So Hard

Sorry I haven't written in so long.  Moving out of the hospital has been 20 times harder than I expected.  I'm soooo glad my sister was here to help me.  She left last night, and today is my first full day alone in the apartment.  I also don't have any therapy today so I really am on my own.

I don't think the move would have been nearly so hard if not for the heterotopic ossification.  I can feel it decreasing my flexibility day by day, and I already can't put shoes or socks on.  My occupational therapist showed me how to put pants on with my reaching claw, so at least I can do that now.

The HO honestly has me scared out of my mind about what the future holds for me.  I can no longer reach my feet because my hips are so tight, so I already can't do a lot of the things I could do when I was in rehab.  I'm very scared what else I'm going to lose.  The therapists at UNC have been working on it for me though, and I'm extremely happy that I've been offered an appointment with an HO expert on Friday.  Now I just have to find transportation to and from UNC for the appointment.  That is non-trivial.

What has been a huge help and comfort since I've been out has been my sister and my friends.  My sister really was instrumental in getting the boxes unpacked here and helping me go through my stuff and getting rid of everything I don't need.  My friends have visited almost every night and brought food and a break from worry.  They have also continued to surprise and delight me by offering much more help than I could ever have imagined.

I want to write more, but I don't have time.  There's so much to do besides blogging.  Paying bills, changing my address, therapy, researching HO, organizing my stuff, etc.  It seems like the pile of todos is unending, but I'll try to blog more often now.

Wish me luck.